The Cultures of Caregiving or The Global Resistance Reader

The Cultures of Caregiving: Conflict and Common Ground among Families, Health Professionals, and Policy Makers

Author: Carol Levin

As the population ages and the health care system focuses on cost-containment, family caregivers have become the frontline providers of most long-term and chronic care. Patient care at home falls mainly on untrained and unprepared family members, who struggle to adjust to the new roles, responsibilities, and expenses. Because the culture of family caregivers -- their values, priorities, and relationships to the patient -- often differs markedly from that of professionals, the result can be conflict and misunderstanding.

In The Cultures of Caregiving, Carol Levine and Thomas Murray bring together accomplished physicians, nurses, social workers, and policy experts to examine the differences and conflicts (and sometimes common ground) between family caregivers and health care professionals -- and to suggest ways to improve the situation. Topics addressed include family caregivers and the health care system; cultural diversity and family caregiving; the changing relationship between nurses, home care aides, and families; long-term health care policy; images of family caregivers in film; and the ethical dimensions of professional and family responsibilities. The Cultures of Caregiving provides needed answers in the contemporary crisis of family caregiving for a readership of professionals and students in medical ethics, health policy, and such fields as primary care, geriatrics, oncology, nursing, and social work.

Contributors: Donna Jean Appell, R.N., Project DOCC: Delivery of Chronic Care; Jeffrey Blustein, Ph.D., Albert Einstein College of Medicine and Barnard College; Judith Feder, Ph.D., Georgetown University; Gladys Gonzalaz-Ramos, M.S.W., Ph.D., New YorkUniversity School of Social Work and NYU Medical School; David A. Gould, Ph.D., United Hospital Fund in New York City; Eileen Hanley, R.N., M.B.A., St. Vincent's Hospital Manhattan / Saint Vincent Catholic Medical Centers, New York City; Maggie Hoffman, Project DOCC: Delivery of Chronic Care; Alexis Kuerbis, C.S.W., Mount Sinai Medical Center; Carol Levine, M.A., United Hospital Fund, in New York City; Jerome K. Lowenstein, M.D., New York University Medical Center; Mathy Mezey, R.N., Ed.D., New York University; Thomas H. Murray, Ph.D., The Hastings Center, Garrison, New York; Judah L. Ronch, Ph.D., LifeSpan DevelopMental Systems; Sheila M. Rothman, Ph.D., Columbia University Mailman School of Public Health; Rick Surpin, Independence Care System.

Table of Contents:

	List of Contributors
	Foreword
	Preface
	Introduction : Caregiving as family affair : a new perspective on cultural diversity	1
1	Family caregivers and the health care system : findings from a national survey	15
2	On loving care and the persistence of memories : reflections of a grieving daughter	35
3	The weight of shared lives : truth telling and family caregiving	47
4	Family caregiving in New England : nineteenth-century community care gives way to twentieth-century institutions	57
5	Nurses and their changing relationships to family caregivers	70
6	The culture of home care : whose values prevail?	87
7	Explaining the paradox of long-term care policy : an example of dissonant cultures	103
8	Family caregivers in popular culture : ideals and reality in the movies	113
9	Integrating medicine and the family : toward a coherent ethic of care	127
10	Project DOCC : a parent-directed model for educating pediatric residents	147
11	Changing institutional culture : turning adversaries into partners	155
	Conclusion : Building on common ground	171
	Index	183

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The Global Resistance Reader

Author: Louise Amoor

In Genoa, riot police sent in to quell demonstrations against a summit of the G8 end up killing a young Italian activist; the Zapatistas organize resistance to the exploitation of their communities in Mexico; in Seattle thousands take to the streets against the WTO and provide a huge shock to our global rulers; worldwide activism ensures that Third World debt becomes a key issue on the international stage; a former World Bank economist writes a best-selling critique of globalization; riots break out in the sleepy Swiss town of Geneva; an anti-corporate analysis by a Canadian journalist becomes a surprise worldwide bestseller called No Logo. Something is happening.

The Global Resistance Reader provides the first comprehensive account of the phenomenal rise of transnational social movements which have opposed the financial, economic and political hegemony of large international organizations such as the World Trade Organization, World Bank and International Monetary Fund. The conceptualdebates, substantive themes and case studies have been selected to open up the idea of global resistance to interrogation and discussion by students and to provide a one-stop orientation for researchers, journalists, policymakers and activists.